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PRECiS (Portuguese translation)

“PRECiS is a 27 item patient-centred measure assessing perceived impact of cognitive problems from the unique perspective of stroke survivors. It was developed and published in the English language (see original tool here: https://www.click2go.umip.com/i/coa/precis.html).

Translation and adaptation into Portuguese has been carried out as part of a student research project by Ms Ana Lúcia Faria, Ms Joana Alegria, Professor Salomé Pinho and Professor Sergi Bermúdez Badia. All are affiliated with  the “NeuroRehabLab”; an interdisciplinary research group of the University of Madeira that investigates at the intersection of technology, neuroscience and clinical practice to find novel solutions to increase the quality of life of those with special needs (https://neurorehabilitation.m-iti.org/lab/) except Professor Salomé Pinho who is affiliated with the Laboratory of Memory, Language and Executive Functions of the Faculty of Psychology and Educational Sciences from University of Coimbra.

A paper is in preparation describing the translation and validation work but, in brief, the process followed the World Health Organisation (WHO) “Process of translation and adaptation of instruments” (2010) framework. The following steps were completed:

1. Forward translation: a professional paid translator translated the PRECiS from the original English version with emphasis on conceptual, rather strictly literal, translation.

2. Expert Panel + Back translation: original PRECiS author, Dr Emma Patchwood worked with Ana Lúcia Faria (PhD student) and Prof Pinho to discuss the forward translation. This was facilitated by a subsequent back-translation (translated back to English) by an independent translator. Further discussion with Ana and Maria to resolve the inadequate expressions/concepts of the translation, as well as any discrepancies with the forward translation.

3. Pre-testing and cognitive interviewing: five Portuguese stroke survivors were administered the instrument and then systematically debriefed to identify any words / expressions that might need to be adjusted.

4. The final version was tested with 50 stroke survivors identified via the Physical Medicine and Rehabilitation department of the Nélio Mendonça Hospital (Madeira Health Service) in a study approved by the Madeira Health Service – SESARAM Ethical Committee (approval number 13/2016). It demonstrated good acceptability, validity and reliability.

PRECiS in Portuguese materials can be found on the 'Files' tab above and include the translated measure plus an administration guide. All are all free of charge to download to not-for-profit organisations for non-commercial research (clinical and non-clinical), non-commercial educational use and for use in clinical practice.

To request a licence to access and use Portuguese PRECiS, please follow the steps below:

 

1. Check the box to the left then ADD TO BASKET.

2. Select to VIEW/EDIT BASKET above then CHECKOUT NOW.

3. You will be asked to 'Create Account' at this stage if you don't already have one. This is to register your basic information.

4. Ensure you have read the terms of the license and then click to SUBMIT / CONFIRM REQUEST. At this stage you will be asked to state your reason for requesting PRECiS.

5. Your order will be received by the Click2Go admin team who will usually approve the request on the same working day. You will receive a confirmatory email regarding the approval of your request and then the files will be available to download.”

 

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PRECiS (Patient-Reported Evaluation of Cognitive State) PT

A patient-centred, patient reported outcome measure assessing perceived impact of cognitive problems in stroke survivors

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